Reddit mentions of NIMBAL Therapy

I'm on day 29 of strict SCD, and it has been a godsend to me.

The best resource I've found is a brand new book that supports the SCD for UC and CD.

Here's the author's cred:
>David Suskind, MD, is attending physician at Seattle Childrens Hospital and Associate Professor of pediatrics at the University of Washington School of Medicine. An expert in intestinal diseases, Suskind has focused much of his energy into clinical care and research for infammatory bowel disease.

And the book, released last month.
"NIMBAL Therapy"

I'm undiagnosed and stalking an unknown issue, but am on day 18 of the SCD and it has been a god damn life saver to me, thus far. Highly recommended!

Check out this book if you are curious about it.

Diet DEFINITELY plays a role in IBD...but it depends on the person.
My friend's daughter has Crohn's and is in remission just through the Specific Carbohydrate Diet. Doesn't work for everyone, but I've heard of it helping adults as well as kids. This is a great resource if you want to give it a try:
https://www.amazon.com/NIMBAL-Therapy-David-L-Suskind/dp/0692430997

Mom of adult son with moderate to severe Crohn’s.

I would call the hospital social worker. I know nothing about your case and I am not a doctor. My son was extremely ill when he was diagnosed, so the Colonoscopy was sufficient to diagnose.

My son takes 12.5 mg of methyltrexate per week at a cost of $90.

He takes the maximum dose of remicaid every 6 weeks at a cost of $25,000. Every 6 weeks. That is the per single dose cost.

He takes folic acid, extra vitamin D, and calcium & Claritin for side effects of the drugs, since they are toxic. You are at risk for early osteoporosis, so you’ll need a bone density scan, and you are going to need regular colonoscopies, up to yearly once you hit 30. You are high risk for cancer then.

You need extra vaccines, because those drugs shut down your immune system. You will have more doctor visits for just getting sick. The remicaid infusions take 3-4 hours. You will be missing work and school.

I’m telling you all of this because you either need to be hired immediately by someplace with excellent insurance and awesome pay for part time work, or you are going to have to have Medicaid.

The reason I’m telling you this is not to scare you so much as get you to go talk to the hospital social worker. You have a condition that can get pretty catastrophic pretty fast, and I’d like to prevent that. They have shortcuts through that process for people who are sick enough.

Some suggestions:

Check out r/FODMAPS . Whether it ends up being IBD or IBS, this diet will reduce your symptoms.

Low fiber, low fiber, low fiber. It will scour the lining of your intestines right off if you are inflamed.

I highly recommend this book. It was written by the doctor who treated my son in the hospital. He is a full professor at the University of Washington Medical School.

See your university’s disability office for accommodations. You are going to have absences, and you need to be able to leave class to go to the bathroom. If you are still in high school, you’ll need a 504.

If you have trouble maintaining employment, check out your state’s DVR (Department of Vocational Rehabilitation.) They can work with you to find employment with reasonable accommodations.

Develop healthy stress management techniques. Stress can bring on a flare, so find what works for you: meditation, exercise, building models or knitting... whatever works. If you can anticipate stress (finals!) then schedule in your stress reduction practices, be meticulous with your diet, and go for it.

I hesitate to mention this, but if you are in a legal state, you might want to see if you can get a green card if you start having too many problems. When my son’s weight starts dropping off, he uses marijuana to get one good meal per day. It does not treat anything: It just masks the symptoms & helps you eat.

I am so, so sorry you are going through this. If you are careful & responsible with your diet and carefully take your medicine, you can have really long stretches that you are symptom free, particularly if you can manage stress & other triggers effectively.