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Reddit mentions of The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism

Sentiment score: 4
Reddit mentions: 5

We found 5 Reddit mentions of The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism. Here are the top ones.

The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism
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  • Random House Inc
Specs:
ColorMulticolor
Height7.99 Inches
Length5.16 Inches
Number of items1
Release dateMarch 2016
Weight0.4 Pounds
Width0.55 Inches

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Found 5 comments on The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism:

u/Kukurio59 · 129 pointsr/videos

For anyone that enjoyed this video and isn't aware....


...There is a lovely book "written by a severly autistic kid"

His mentor helped him write it, it's very short... and took a long time... but it's completely incredible to read. It brings you straight into the mind of an autistic ....


The big take away, if you aren't going to read it is...
...These people are VERY aware of their situation and how difficult their life is making everyone elses.

It seems their inner-voice is quite normal, they just can't seem to express themselves properly.


The book is called: The Reason I Jump.

Link for free: https://www.readanybook.com/online/565387

To buy: https://www.amazon.com/Reason-Jump-Inner-Thirteen-Year-Old-Autism/dp/081298515X

I don't know anyone that is autistic.
This book was very interesting to me.

u/dario_perez · 11 pointsr/autism

Hi!

>A bit disjointed, no direction, I just have to let some out.

This has happened to all of us. It will change.

> Our first indication of something needing addressed was the fact that he wasn't talking. When I express this to people close to us, they seemed to think oh he must be using baby talk or can say momma and dadda. Nope. None of that. Not even assigning nonsense words that we could decipher. I personally did not think this was a big deal, I didn't start talking until 3. However, tons of people around me told me to talk to our PCP and get him speech therapy. Ok, what could it hurt?

> Our PCP informed us that she was going to set up an evaluation. I assumed a basic inventory of his health and hearing, blood tests, etc. What I did not expect was a full battery of experts. The day lasted nearly 6 hours. 5 different experts, MDs and PhDs, and many other initialed experts among them. I was pretty impressed with their demeanor, much of the time was spent "playing" and observing. Questions and directions. I did not realize from what looked to be pretty simple process how much info was gained and being interpreted.

> The indicators. At first, it seemed ridiculous. I'm certain based on my son's demeanor they had arrived at their conclusion before much evidence was present. Examples, when playing with cars, the minute he rolled a wheel, they asked us if he does this often or with other objects. Nope. Just loves rolling cars about-like a normal kid! They informed me that he did not like stacking blocks-he preferred lining them up. Ok.... He stacks them all the time at home. Last doc we visited with seemed especially keen on his habits, noting he only chose the cars, ignoring everything else. Asked us if he flaps, nope. Upon wrapping up, he gathered the cars (very gently, not in a mean way) and of course our son gets mad. "That's flapping!" An immediate reaction, I was surprised this wasn't "normal" for a two-year-old? Doc said it with such authority I didn't question it.

Your evaluation was performed in the best possible way. Our twins were evaluated along that procedure (ADOS-2 probably). Since your kid doesn't talk yet probably you will need a second evaluation in the future. Our ST made us wait before evaluating our kids (like or pediatrician, he also suspected at least one of them had ASD). His approach was to produce a communication channel before the evaluation to have a better assessment. After the long evaluation, kids were diagnosed with 18 and 22 on the ADOS scale. This put them above the Asperger range, but at a mostly functional range. Our neurologist (the head of the evaluation team) told us that this evaluation was their last. No further evaluation was needed.

> On the drive home, my emotions ranged. First, these guys don't know my boy. It seemed like they made a big deal about everything. How could they have gathered enough info to make such a huge diagnosis???

Because they are trained, they know where to look. The other positive point is your boy is very young so all the symptoms are there to catch and no bias because of age is present. So it is easier to pinpoint the level, and produce a set of 'countermeasures' through early intervention to make him feel better about the world and himself.

> Eventually, I realized, I do know my boy. I know him deeply. He reminds me of myself. Him playing with little pieces of carpet in a room full of toys, me sitting down in the outfield playing with grass instead of playing T-ball. Intent on his particular toys, as I was with my Legos. In his own world. Throwing the blankets off at night, perhaps this is a skin sensitivity? Banging random objects, is that stimming? This and more, many more little signs...they add up.

You know a part of him, but being autistic there is another part that is hidden behind a veil and you can't access to it and he cannot explain to you that yet. One book (recommended here) that I found quite enlighten is The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism. You can read it in an hour.

Also, I also told the psychologist interviewing my wife and I that my kids remind me of myself as I shared some traits with them. She told me, they were the ones being evaluated and whatever similarity was not relevant to them. Thus, don't overcomplicate yourself, try to build from your shared traits upwards to guide him into a fulfilling life.

> And I well up. I love my boy. He isn't a set of signs or indicators. How do they have the temerity to think they can assign labels or know what he is? I know WHO he is. And I worry. About programs that aim to "normalize" him. About teachers who may not give him the benefit of the doubt or the opportunity to excel. I worry that a diagnosis may hold him back and instead of building him up they'll remove his essence. Family who sees him differently.

Acceptance will come, but this doesn't mean you won't demand them to excel. Yet, you need to know his boundaries and be very aware of his strength. I wrote a lot about my kids here. Every kid is different, so you have to look for yourself.

Our twins are 4 y/o now. They started ST at 2.5, then moved to an inclusive school (50%ASD-50%NT) with ST, OT and PECS oriented classroom. This environment has helped a lot to develop their spoken language, feel more comfortable around people, and communicate their needs. You NEED every therapy available NOW.

Our neurologist told us the following: "if you do nothing now, they can go to a regular school without problems. They will adapt, but you won't have the best version of themselves. If you support them in every possible way, go to [this type of school] then you will drive your kids to become the best they want to be.

But for you, doing this will be the hardest five years of your life. So, you need psychological support and live a healthier life. You need to be there, every hour for your kid now."

So we took the second option.

Our kids, can speak now (not with the fluidity of a 4 y/o) and communicate most of their needs. Their tantrums and quirks are mostly contained (they appear when they are really tired or anxious). They are very clever kids, that love numbers, words, and music.

They excel at numbers: count from 1 to 30 (understand the symbols and their relation to quantities) in Spanish (mother language) and English. They can do basic sums (without finger counting) and now they are learning subtraction. They also have a strong interest in words: know the full ABC (some letters from the English pronunciation), read some words, understand words in English (colors and shapes; also many animals), and now they are learning to construct words from syllable.

We are using iPads to strengthen these areas. I bought them Tiggly when they were very young (two years ago) and this fourth birthday (yesterday) they received Osmo's Genius Kit. They loved the Tangram because puzzle-solving is one thing they love to do a lot (and this is in another level).

> I don't know the future. I only know that we will exercise agency in every decision along the way. We will advocate for rights and opportunity. We will be better than our parents. He will not be called "doofus" or "f-ggot." I'll hug the sht out of him but never hit him. He's our boy dammit, I love him, and that's all that matters.

Nobody knows​ the future, even us 'normal' people.

What you feel about parenthood is what I felt, even before knowing they had ASD. The thing you mention may even happen to a regular kid with special interest, whether has ASD or not. In our special case, we need to learn about ASD to approach to learning in the best possible way for the mind of our sons.

Be patient, It will be better.

EDIT: grammar.

u/TheHatOnTheCat · 5 pointsr/Parenting

If you want to understand your nonverbal autistic child, there are some great books out there to help you do that. I personally have read and recommend:

  • The Reason I Jump: A short and easy but moving read. This is a book by a nonverbal Japanese autistic boy who learned to communicate through pointing to letters/writing. While we can't say for sure his experience is the same as other children like him he explains is feelings, sensations, and the reasons for many of his behaviors that are common to autistic children.

  • Carly's Voice: Longer book but moving and well written. Most of the book is by Carly's father. He tells the story since infancy of his family including his daughter Carly who is severely autistic and nonverbal. Many considered her severely mentally disabled. However, when years later she finally learns and is willing to communicate through letters/writing (it is physically a lot of work for her) he learns she is much brighter and more aware then he imagined. Includes passages, conversations, interviews by Carly in the book that give information on what she is experiencing.

  • Thinking in Pictures: My Life with Autism Written by genius animal behaviorists and well known person with Autism/speaker on Autism Temple Grandin. Tells her life, her experience, and how she thinks and experiences things differently. Between the other two books in length she is less severe on the spectrum then the Carly or Naoki but she still thinks, feels, and interacts with the world in a way that it was amazing to have insight into/I would never have guessed.

    Order these three books right now. They're all well written and so so insightful. You won't regret it.
u/the_singular_anyone · 3 pointsr/autism

The Reason I Jump is a pretty good light-reading primer on the how's and why's of a boy with autism. Plenty of eye-opening information, particularly about how he describes his behaviors and his cognitive process.

Ido in Autismland is another favorite of mine. More in-depth and slightly longer winded, it's a book rich in information, but definitely the one I'd read second.

The market is saturated with plenty of books on autism written by psycological or disabilities professionals, but if you really want to understand, I find there's no substitute for a book written by an autistic author.

u/gnikzilgnikzil · 2 pointsr/education

the reason i jump is a fantastic read for a look into the mind of an individual with autism.