(Part 2) Best products from r/Endo

Welp my fave youtube video on pelvic floor drops has been taken down, but I would recommend searching youtube for 'pelvic floor drop' and focus on learning to relax your pelvic floor first, then you can try to focus on just general pelvic floor tone and health videos. Your mom may have different issues having had 3 kids, it's possible that she may need to focus on strength exercises, if she's open to going to see a PT it could help to have her evaluated by a specialist PT so she knows which route to go.

I really hope you find some relief. My PT recommended for me to do several sets of 10 pelvic floor drops every day and also use a Franklin Ball to roll on my stomach, hips and thighs. I would lay down on the ball and allow my muscles to relax around it, that would help stretch my tight muscles. You might also look into restorative yoga classes or meditation to help relax and retrain muscles.

Are yours the kind where the tens unit cord snaps onto the electrode, or is there a shorter bit of cord attached to the pad which attaches to the unit? This page has both: https://www.amazon.com/stores/node/14057779011?_encoding=UTF8&field-lbr_brands_browse-bin=Discount%20TENS&ref_=bl_dp_s_web_14057779011

I got these ones from that brand and they're super duper sticky, they'll definitely last a long while: https://www.amazon.com/gp/product/B01N3N6IJ6/ref=ppx_yo_dt_b_asin_title_o05_s00?ie=UTF8&psc=1

For travel and for falling asleep without worrying I’m going to set the house on fire, I love the little temporary ones I can boil and reuse. link

I haven’t found a great wrap yet, looking forward to reading the recommendations you receive!

its an herbal supplement that's supposed to help relieve cramps. the taste/smell is horrid but i definitely feel that it helps me with some pain relief.
This is the one I get: https://www.amazon.com/Herb-Pharm-Extract-Musculoskeletal-Support/dp/B0016B7TC4#customerReviews

My guy is also large but he’s into toys. I’ve noticed I cramp less depending the toy (smaller) we use that night. He has a glass version of the link below that I LOVE.

https://www.amazon.com/Njoy-Pure-Metal-Polished-Steel/dp/B00FEKPCTU

Hot Hands Heat Body Warmers with adhesive are my cheap go-to. 40 for less than $30 usually and stay warm for hours. Larger than the hand ones and to me are a much less intense heat because it’s spread out.

Hey u/excogito_ergo_sum, you should definitely look into mast cell activation syndrome based on symptoms and what meds have helped you. I highly, HIGHLY recommend reading this book about MCAS. Yes, it's $20 and not available in most libraries, but it is SERIOUSLY life changing. Best book I have read since I've been sick because it explains so. many. things. about mysterious symptoms and why the medications you're on are helping. Quite specifically, H1/H2 receptors are what Dr. Afrin (the author of the book and leading expert on mast cell activation syndrome) uses first in treatment - you are already on Zyrtec which is one of them. Next step is hydroxyzine, which you are already also on.

I have this TENS unit. It definitely helps. I usually just slip the unit in my waistband. (It's pretty damn small)

I got “post maternity or postpartum” pajama pants from target I had to get them with free delivery since they don’t always have them in store. Soo comfy and easy on the belly.

For underwear wirarpa Women's Cotton Underwear... https://www.amazon.com/dp/B07MYQMH5D?ref=ppx_pop_mob_ap_share
I still wear them everyday because the high waist is so comfy and doesn’t cause me cramping. The fabric is very soft everything else I owned was too scratchy. They are pretty absorbent so I don’t have to use a liner if it’s just spotting. I ordered a size up so there was room for swelling.

They’re a bit warm so I may be looking for something similar but lighter weight for Fl summer

Excuse the terrible link format (stupid phone), but I got this XXXL heating pad on amazon. It’s amazing. I can use it to cover my front and back at the same time by wrapping it around myself. It’s what every endo sufferer needs. I like the timer on it too so if I fall asleep it automatically shuts off.

https://www.amazon.com/dp/B07S1C4P54/ref=cm_sw_r_cp_api_i_C8sKDbQTQV0ZZ

It's probably too late, but I purchased one of these: https://www.amazon.com/Mattress-Genie-Lift-System-King/dp/B000CAAZSA

It made getting in and out of bed the first few days much easier, plus it forced me to sleep inclined which helped with the pain. I still use it when I have a cold or if I want to read sitting upright. It has a remote and basically turns your bed into an adjustable bed.

As for the first few days, I had a friend stay with me to help me get in and out of bed and also do things like cleaning my cats litter and feeding them.

Pain wasn't too bad (I had an ovary and both tubes removed). I personally didn't have issues with gas pain but I did have issues with constipation due to the meds. A little mineral oil worked when nothing else helped.

By day three I took a short jaunt to Walmart. Probably should have waited a week to do that as I did have some pain after, but I was feeling a little cabin fever. Mostly just hung out in bed and watched Netflix and slept a lot.

I am sure your lap will go great! Touch base and let us know how you are doing!

https://www.amazon.com/Dr-Tobias-Probiotics-Women-Post-Antibiotic/dp/B00XJR4XGI/ref=sr_1_3_a_it?ie=UTF8&qid=1510172110&sr=8-3&keywords=probiotic+dr+tobias

That's interesting, luckily probiotics are in a few of my favorite food items too. But It's one I found on Amazon, the reviews were pretty good so I thought I'd try it to add to my diet.

I figured my options were limited to surgery. I have not ruled out the possibility of having another child. But he says that I should still be able to after surgery. Obviously it's possible that's not true. But surgery always has risks. That being said I have decided I will have surgery, when I can afford it. I tried the IUD some years back which seemed to work at the time but my last gyn didn't want to do it and my specialist only does surgery. So waiting it is! He did tell me I should get a colonoscopy though. But i've seen pictures where women had adhesions and tissue on their diaphrams, colons, bladders....this is an ugly disease. Thank you for your suggestions and input!

I use these stick on heating pads, the box says 10-12 hours heat, I usually find they last more like 24+. I use two side by side! This is on the Canadian Amazon marketplace, but they may sell the same ones on the US one. They're a dollar each, totally worth it. https://www.amazon.ca/gp/aw/d/B000KXE6E8

Not maternity jeans but I’ve bought a couple pull on jeans (no zipper or buttons). There are some really nice ones now.

These aren’t the ones I have, but same concept.

Signature by Levi Strauss & Co. Gold Label Women's Totally Shaping Pull-On Skinny Jeans, Immaculate, 16 Medium https://www.amazon.com/dp/B077R5591S/ref=cm_sw_r_cp_api_i_diizDb5EYTMJF

Yes, the growths unfortunately spread and the spreading can cause more adhesions as well. Any bleeding from lesions can irritate, promote scar tissue and build more adhesions.

I went from one surgery where my doctor said my lesions were minimal, isolated to my uterus and my bowel. Only a few years later it had spread to my bladder, ovaries and I've grown extensive lesions attaching my bowel and uterus.

Keep in mind that the amount of growths and pain being experienced don't always correlate. Prostaglandins can play a huge role in how much pain we experience. Women with minimal lesions can experience excruciating pain while others can have extensive growth and damage and only feel a bit of discomfort.

If you're experiencing bladder symptoms you should speak with your doctor, it could just be a bladder infection. If it's not, make sure your symptoms are thoroughly investigated outside of endo. Interstitial Cystitis is fairly common in women with endo and treated differently.

That being said, I get bladder symptoms (burning, urgency, pain) that seem to be associated with when I have cysts. Bleeding and irritation then it calms down when the cyst is gone. It's been a few years of that and while it definitely varies, it hasn't gotten worse over all.

this article under programming genetic pathways has a description of how growths can grow and change, it's wording is a little intense but it's the best I could find atm. I highly recommend this book . It helped me when I was first diagnosed to get a baseline understanding before doing research on my own.

I double checked and it was actually $25 but still, a good deal.
https://www.amazon.com/gp/aw/d/B01M5FZ5EY?psc=1&ref=ppx_pop_mob_b_pd_title

http://www.amazon.com/Heal-Pelvic-Pain-Strengthening-Incontinence/dp/0071546561

It's under $13 on Amazon before shipping :)

Has anyone read the book Ask Me About My Uterus?

https://www.amazon.ca/Ask-Me-About-My-Uterus/dp/1568585810/ref=mp_s_a_1_fkmrnull_1?crid=7XFVSIW2097C&keywords=ask+me+about+my+uterus&qid=1555051643&s=gateway&sprefix=ask+me&sr=8-1-fkmrnull

I found it to be very encouraging and made me feel less alone.

My absolute favorite is this oversized heating pad. It doesn’t get too hot to burn but hot enough to bring down the pain, and turns off after awhile. Full disclosure, I fall asleep with it on the highest setting all the time and have never gotten burned.

Pure Enrichment PureRelief XL Heating Pad for Back Pain and Cramps - Fast-Heating, Ultra-Soft Heat Therapy with 6 Temperature Settings and Auto Shut-Off Feature - 12" x 24" (Charcoal Gray) https://www.amazon.com/dp/B01KVYTV86/ref=cm_sw_r_cp_api_i_kHS1Db0KH64XH

Although, this is another one of my favorite options. For me, the heat from water is much more therapeutic (see my massive water bill for the several hot showers a day I take haha). But this is like an old fashioned rubber hot water bottle. A lot of them come with cute covers on them. You pour hot water in it and it literally lasts the night.

Hot Water Bottle with Knit Cover, UBEGOOD Rubber Transparent Hot Water Bag, Good for Pain Relief (2 Liters, Blue/Gray) https://www.amazon.com/dp/B07K6BMNPX/ref=cm_sw_r_cp_api_i_FJS1DbKPR4BFD

Finally, I personally don’t like this because it is too tight on my belly, but some of my other friends with endo swear by using this at work. It might be more discrete in the workplace.

DOACT Waist Heating Pad for Back Pain, Heat Waist Belt Hot Compress Therapy for Menstrual Abdomen Cramps, Lower Back Pain Relief, 5V Electric Heating Pad for Women Men https://www.amazon.com/dp/B07SR1JRHR/ref=cm_sw_r_cp_api_i_PKS1DbQTMM4CR