Best products from r/Hidradenitis

I'm with you on the bandaid adhesive allergy. And yes I can use tegaderm I've actually been using it on the same two areas 24x7 for over a month now after HS surgery on my groin and thigh. It is very expensinve, however I found that you can save a lot of money buy purchasing it in 100 packs from Amazon.com. It's normally about $1 US per sheet at the store in a box of 10 but on that link it's almost 1/4th the price! I actually got Amazon Prime just for this 3 years ago after my first HS surgery and it's paid for itself. They sell larger sized sheets but you can just use multiple ones of these instead and it's more cost effective. Hope this helps you and anyone else save some money!

[Edit] I just wanted to say to anyone else I really love tegaderm this stuff is awesome it's a little tricky to use at first (kind of like how saran wrap is tricky, but not that bad) but it's definitely some awesome stuff and a lifesaver to people like me and IdahoLynxx. I really wish I could tell the world about this stuff. If I put a bandaid or tape on sensitive area of skin I will get a poison ivy like rash and have had the skin rip off when taking off the bandaid but not with tegaderm.

Like others have said, it varies so much. I really feel for you, it sounds like you are having a particularly tough go of it. Nightshades do indeed bring me trouble, personally. Also, I haven't found supplements to be of any consequence. I am a dairy-free vegetarian myself. I shower once a day and I only ever use Hibiscrub on my body. I believe that this product helps my skin. I cannot recommend Sudocrem enough, both for soothing existing wounds and healing quieter/inactive wounds. I only trust Jason Deodorant. I find it soothing and effective. I wouldn't make a homemade deodorant, but that's down to my own ignorance on the topic. Jason works for me. You can find the products on Amazon but they are reasonably popular - if not available on Amazon you should be able to find other vendors on other websites.

Hibiscrub: https://www.amazon.co.uk/Hibiscrub-Health-Care-500-ml/dp/B001AV4C20

Sudocrem: https://www.amazon.co.uk/Sudocrem-Antiseptic-Healing-Cream-Eczema/dp/B012CDLHR2

Jason Deodorant: https://www.amazon.com/Jason-Roll-Deodorant-Purifying-Fluid/dp/B00014EGEG?ref_=fsclp_pl_dp_10

Sudocrem: https://www.amazon.co.uk/Sudocrem-Antiseptic-Healing-Cream-Eczema/dp/B012CDLHR2

(I know I've included Sudocrem twice, but it really has made my life easier and if I can share it with anyone I would love to. Also sidenote, I also use it as a face cream twice a week when I go to bed. I use white pillow cases because it is a thick cream. It's my skins best friend)

Good luck OP.

In all honesty, pubic hair isn’t meant to be waxed or shaved. It’s also something that is totally natural and normal. Having it doesn’t make you dirty but the porn-filled culture we live in makes us women feel that we have to be dolphins in order to be clean and sexy for men. You can be clean and sexy and attractive without shaving, ripping, or burning your hair off.

That being said, the best way to avoid razor bumps, the pain of waxing, and HS flare ups is to do nothing.

Obviously most women do some kind of grooming, myself included. I would recommend buying an electric razor like this and keeping your hair trimmed instead of completely shaved. You’ll get a close enough shave that you aren’t “hairy” but you’ll be bare enough to not get ingrowns, razor burn, etc.

Have you thought about wearing a dress,I have the same and quite often have to resort to dresses which works for me as long as I wear cotton tights with it.

I also have a fair few pairs of coated leggings that have a cotton inner lining,or jeggings which have pockets that look like jeans but are actually leggings with no harsh seams

Also most of my tops are tunic tops that look great with these kind of bottoms and are loose enough for my skin to breathe as I have it under my arms and breasts too

Hope this helps and good luck

Edit-I creeped on OP’s profile and realised she was American so updated the links (or attempted to!) to clothes available in the US

Here you go. My support group says the Duluth trading company bare naked undies are the best.

Puracy Natural Laundry Stain Remover, Enzyme-Based Spot Cleaner, Free & Clear, 25 Ounce https://www.amazon.com/dp/B00ISDMQ8U/ref=cm_sw_r_cp_apa_i_b6PKDb4JTD4ZE

I find restful and full sleep helps my cysts and skin overall. Magnesium is amazing for better sleep you’re totally right. Yours is a Canadian supplement. I take this stuff
Natural Stacks: MagTech - Magnesium Complex - www.amazon.com/dp/B00HZWHGJ4/ref=cm_sw_r_cp_api_i_gFLACbN7DTCXZ
chelated magnesium. Rich in l-threonate, taurate, and glycinate,
I need to add a zinc supplement

hi there, please read!! there is hope:)!!

i had hidradenitis suppurativa from the age of 11 until i was 26 years old on my bikini line and butt. It was painful, embarrassing and really affected my confidence. At 26 I finally went to see a dermatologist in Manhattan who gave me two options. the first option was to go in antibiotics for two months or go a natural route and take a combination of two supplements for 6 months twice a day. I chose to try the supplements and it fucking worked!!!! I am 28 now and RARELY get a flare up, and if i do its tiny and goes away quickly.

Here is what to take and how often:
two times day daily (in the morning and in the evening before bed) take 500 mg of Niacinamide and 25,000 IU of vitamin A (beta-carotene).

Here links to the supplements (make sure buy a quality brand) :

https://www.amazon.com/Swanson-Niacinamide-250-Milligramhttps://www.amazon.com/NOW-Natural-Beta-Carotene-Softgels/dp/B00024D862/ref=mp_s_a_1_3?keywords=beta+carotene+25000+iu+softgels&qid=1563233280&s=gateway&sprefix=25000+iu+&sr=8-3s-Capsules/dp/B00068SIY6/ref=mp_s_a_1_3?keywords=niacinamide+swanson&qid=1563233215&s=gateway&sprefix=niacinamide+swan&sr=8-3

Other notes from my dermatologist:

Although u may think working out can make flare ups worse because of sweat, sweating is very important to help detox the skin!!! Just make sure to shower shortly.

Use a body wash with tea tree oil.

Stay away from inflammatory foods, especially dairy and processed oils.

Drink LOTS of water.

I hope this helps someone. It really worked for me and i am so
relieved.

I started a modified Paleo diet a year ago and I've seen a dramatic improvement. I'd say 95% improvement. There are days and weeks where I forget I even have HS. The diet change is difficult--I would get depressed at the thought of food--but I adapted to it after 6 months.

Castaway Kitchen (Cristina Curp) and Curious Coconut (Amanda Torres) have very good AIP/Paleo recipes. They both have HS and have put it into remission using diet.I've tried their recipes and they taste very good. I've made the chicken more times that I can count.

https://thecastawaykitchen.com/2018/01/crispy-ginger-lime-baked-wings-whole30-keto-aip/

https://thecuriouscoconut.com/blog/paleo-plantain-flour-pancakes

Also, this is a great book - Mickey Trescott's Autoimmune Paleo Cookbook
https://www.amazon.com/gp/product/0578135213/ref=dbs_a_def_rwt_bibl_vppi_i0
I use the winter squash soup recipe quite often.

Cristina Curp's book 'Made Whole' is excellent.
https://www.amazon.com/Made-Whole-Anti-lnflammatory-Keto-Paleo-Recipes/dp/1628602945

This is sort of expensive but I eat tons of it. It might be all in my head but I seem to absorb better the nutrients when I eat gummy vitamins. I've actually had some success with the flare-ups going down.

Since I'm a compulsive overeater I have to be careful cuz sometimes I can really go to town on these.

Vitafusion Turmeric Curcumin Gummy Supplement, 60 ct https://www.amazon.com/dp/B07C97ZCD1/ref=cm_sw_r_cp_apa_i_vTIYDbXPBRJNC

Hey guys this is the one I use it has no adhesive but an absorbent patch in the middle and I tie the gauze around the abscess. It’s super great and doesn’t bother the area. No tape is needed which is good since the glue from the tape can cause rashes and irritation. Hope this helps !

link

Not OP - but I started taking turmeric supplements a few months ago on a whim and feel like it's made a big difference! I got this supplement from Amazon. I haven't really made any other changes and have noticed that flare ups have been waaay more manageable, and go away a lot faster. Mine is mostly hormonal, but I haven't gotten any of those huge, golf-ball-under-the-skin flares since I started taking it.

I’ve been having good luck with this:


Funwill Transparent Stretch Adhesive Bandage Tape Retention Dressing Tapes- Hypoallergenic,Waterproof (3.93" x 10.93 Yards) https://www.amazon.com/dp/B07BRWZ28M/ref=cm_sw_r_cp_api_i_81EYCb9BP2PC1

Medipore + pad.... they also make plain medipore tape, the stuff is awesome!

https://www.amazon.com/3M-Medipore-Adhesive-Dressing-3M3571/dp/B000BF1EYA?th=1&psc=1

CURAD makes bandages that have arm & hammer in them to help with wound odor: https://smile.amazon.com/gp/product/B071V9GHN5/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1

Then it must be a different trigger, here is a book that I highly recommend: https://www.amazon.com/Hidden-Plague-Overcoming-Hidradenitis-Suppurativa/dp/1939563011/ref=nodl_ I’m currently reading it right now.

AmLactin 12% Moisturizing Lotion - 20oz https://www.amazon.com/dp/B0013RIPMO/ref=cm_sw_r_sms_c_api_i_5BNKDbAT59V6F