(Part 2) Best products from r/Interstitialcystitis

I love Adagio Teas. Anything in the Rooibos category has been safe for me, and all of the herbals except Mate teas, it has caffeine. I think they include it in "herbal" because it is not from the tea plant. I recommend the hazelnut and caramel flavors to people who miss coffee drinks.

I didn't especially like the taste of marshmallow tea. It tastes a bit too "rooty" for me, but you might like it. I got this brand from a local grocery store that has a lot of eastern European foods. If you've ever had Hypnotiq Harmonie, that's what it tastes like.

It's important to note that marshmallow root tea interferes with absorption of oral medication.

The biggest help was using a Berkey Filter. You can also find them on Amazon, just be sure you are getting a official one, there are knockoffs that don't do the same thing. The reputable Berkey companie does sell on Amazon at Berkey On Amazon.

It filters out all of the chemicals that are necessary to cleanout the water.

Like I said, trying to have an alkaline diet is also important. How to do so is explained better https://howtoremovetoxins.com/how-to-alkalize-your-body-feel-better-by-being-less-acidic

We use Puroast Low Acid Coffee or Java Planet Organic Coffee.

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I used a wax vaporizer that I accidentally bought a few months ago (I thought it was for flower, lol). Here's a link: Muad dib Concentration Box by Magic Flight Launch Box- Walnut by Maud Dib https://www.amazon.com/dp/B01N917L93/ref=cm_sw_r_cp_apa_7hM0BbGQRGD8M

It's $120, but that's honestly a totally reasonable price. I've read that you can smoke wax just like smoking flower, but vaping is always better, in my experience.

If a new chair isn’t an option I use this cushion for car rides and in chairs I expect to sit in for a super long time!! My physical therapist recommended it and I like that it has optional ice pack as well!

Kabooti Ice Seat Cushion with... https://www.amazon.com/dp/B07H394QSL?ref=ppx_pop_mob_ap_share

Um, most brands, as far as my experience has been.

This is what I take for vitamin D: Amazon Brand - Solimo Vitamin D3 50 mcg (2000 IU), 365 Softgels, Value Size - One Year Supply https://www.amazon.com/dp/B079C83Z3L/ref=cm_sw_r_cp_api_i_evh2Cb25147Z8

Natures Bounty Vitamin B-12 1000 Mcg Tablets, Value Size - 200 Ea https://www.amazon.com/dp/B00DYSUQR2/ref=cm_sw_r_cp_api_i_0wh2CbSESDK0B

I just bought these and they are comfortable at the waist. They are a cotton chino kind of fabric, but the waist is a stretchy knit. They are capri, but the hem is rolled and folded, not sewn down, so they can be unrolled to make them a longer crop. I'm only 5'3" though.

Lee Women's Missy Relaxed Fit Austyn Knit Waist Cargo Capri Pant, Black, 12 https://www.amazon.com/dp/B013WBLJYO/ref=cm_sw_r_cp_apa_i_AcDwDb111T8QG

Agh yah you've done everything it seems like. We also use this https://www.amazon.com/gp/aw/d/B01C9KBN5E/ref=yo_ii_img?ie=UTF8&psc=1 instead of coconut oil sometimes bc it doesn't bother me as much. Hope you get relief soon

My sedentary hobbies predate my IC issues, so I always have a handheld gaming console nearby. My 3DS gets the most use although I also recently picked up a gooseneck stand for my Switch so I can play more comfortably in bed. When I'm flaring, I stick to relaxing games like puzzlers (Picross) and laid back sims (Stardew Valley).

Edit: added link

I have struggled a lot with this. It got to the point where I thought I could definitely tell the difference between a UTI and a flare, but I would go to the doc for a urinalysis just to be told that there was no sign of infection.

This product saved me many a time. Super cheap and way cheaper than what I thought was the only similar product on the market.

There is a book meant for the partners of people with IC called "Please Understand" Link to amazon that is supposed to help the healthy partner get it and offer suggestions for both parties to navigate IC. I haven't read it but I know some people who found it helpful for a spouse who can't seem to understand. You might also bring him to a doctor's appointment with you if you haven't already so he can hear it from a doctor, it's shitty but some people take things more seriously when an "authority" person says them. He could also post here, we get that kind of post at least once a month and it seems like the healthy partner learns a lot from it.

https://www.amazon.com/Sunbeam-King-Size-MicroPlush-XPressHeat-Controller/dp/B005NZ66KU/ref=sr_1_4_s_it?s=hpc&ie=UTF8&qid=1538688311&sr=1-4&keywords=sunbeam%2Bheating%2Bpad&th=1


I have one of these, I'm almost positive it's the same one. It's the size of my entire back. I can get relief all across my back at the same time instead of choosing one half.

It has an auto off feature that can be disabled, which I do not recommend you do unless you are sure you wont fall asleep.

If you can tolerate ginger, the Asian grocers have a great ginger tea, which I live on when I get a cold.

You can also just buy ginger root and brew your own. Easier to control known ingredients.

I bought this pill organizer with Amazon prime and I love it! pill organizer

I buy this one: https://www.amazon.com/dp/B013XWG3MU/ref=cm_sw_r_cp_apa_i_aZPUCbR2KVN4M

Would you mind sharing which source you like?

Was a huge one for me. I drink this now, big difference and less flares. Plus decaf isn't TOTALLY caffeine-free, so it gives me a little boost in the morning! https://www.amazon.com/Lucy-Jos-Coffee-Organic-Mellow/dp/B072FHYX6V/ref=mp_s_a_1_8?adgrpid=59813224961&hvadid=274683959733&hvdev=m&hvlocphy=9003602&hvnetw=g&hvpos=1t1&hvqmt=e&hvrand=6923697566792151754&hvtargid=kwd-378265363148&keywords=decaf+acid+free+coffee&qid=1551217638&s=gateway&sr=8-8&tag=hydsma-20

I have an Anabox weekly pillbox. It's a rainbow! But it's also really functional and makes things much easier.

I do the weekly refill and I've also been trying out using an app on my phone called Medisafe. You can set reminders to take your meds and also track when you'll need to order refills etc.

I've had some luck with random apple juices, but really you're going to be looking at an organic store. Whole Foods, Trader Joe's....

Amazon sales Whole Foods' brand which is called 365.

https://www.amazon.com/365-Everyday-Value-Organic-Apple/dp/B074VG4CMW

https://www.amazon.com/R-W-Knudsen-Family-Juice-Blueberry/dp/B0046HEE8M?keywords=blueberry+juice&qid=1540412592&s=Grocery+%26+Gourmet+Food&sr=1-7&ref=sr_1_7

Yeah. It tastes terrible. This stuff comes closest to the taste of the real thing, IMHO: https://www.amazon.com/gp/product/B00DCAHPYO


Even my husband was impressed.