Best products from r/Tourettes

The below links might help you to explore this new found piece of yourself!

Here's an article about tourette co-morbidities which you might want to check out with the four-part Newly Diagnosed: Tourette seminar. And below are other programs about adults with TS and coprolalia.

Claire Sophie A teen documenting her life and its inclusion of TS with coprolalia

My F ing Tourette's Family (46:53) Follow the Davies-Monk family from Oxfordshire, England as they try to break out of the seclusion that has been enforced on them by other people's negative reactions to their two children who both have severe coprolalia and copropraxia as part of their Tourette's Syndrome.

Tourettes And Me (58:47) Demystifying the fascinating condition, this intimate and heart-warming documentary re-visits John Davidson and Greg Storey 12 years on from the award-winning BBC 1 documentary ‘The Boy Can’t Help It’.

Twitch and Shout (31:43) You can’t help but fall in love with the two boys with severe tics at the heart of this documentary from a co-ed Australian Tourette camp.

What's it Like for Kids With Tourette's Growing Up? (46:10) Follow three British boys for 6 months as they go through therapy together to try to learn how to exert some degree of influence over their diverse tics. The therapy increases the tic frequency and variability of one boy, allows another to consciously suppress for up to two hours (followed by a flurry of strong tics afterwards), and makes almost no difference for the third child. The program is worth watching to see the world’s best grandparents alone at 10:15 and then 35:09.

What Does Having Tourette's Feel Like? | 20 Answers (2:42) - Jayme gives 20 explanations of his experience of TS, several of which include Star Wars references

Try Not To Move Challenge Tourette’s Edition (10:18) - See a tic surge following suppression as Adam Ladelle (who won second place on The Voice Australia) displays the difficulty of attempting suppression.

The Undateables (47:00) People living with challenging conditions are often considered ‘undateable’. This series meets a few and follows their attempts to find love. Close to a quarter of the shows feature a person with Tourette Syndrome including Rapper Brent Zillwood, Rugby Hunk Tom Morgan, and Stand-Up Comedian Luke. Because of the occasional language, an account is needed to see all the shows on their website while the early seasons are all available on Youtube starting with episode 1.

A Different Life: Nick's Story (22:32) Follow 8-year-old Nick through a typical school day and family life in Scotland with mild Tourette and ADHD. See family dynamics, friendship, and his supports at school.

Things Not To Say To People With Tourette's Syndrome (6:11) A group of adult men and women chat about the questions and observations they commonly encounter about their Tourette's and are happy to clear up any misconceptions about it that might be out there.

Jess Thom - Anything that includes this wonderful artist and comedienne

Russell Howard’s Good News speaks to real life hero Jess Thom (9:39)

Richard Herring's Leicester Square Theatre Podcast #130 (47:53)

Laughter as a Catalyst for Change, Annual Disability Lecture 2015 (64:44)

Three guys with Tourette Syndrome Go to Live Theater (12:27)

Performing Beckett with Tourette's - BBC Newsnight (4:29)

Beckett's Not I, Trailer (1:43)

Jess Thom of 'Backstage in Biscuit Land’ discusses Relaxed Theater | BK Live (14:02)

What is freedom? with Jess Thom, 'Touretteshero' - BBC News (1:20)

Comedian Samuel J. Comroe, Full Performances On America's Got Talent 2018 (21:44)

Adam Ladell - Guy with Tourette WOWS The Voice coaches (4:21)

The Tic Code (89:00) - Rated R Miles (Christopher Marquette) is an adolescent jazz piano prodigy and personable boy living with his mother Laura (Polly Draper) in a modest Greenwich Village apartment. They live near a jazz club where Miles meets Tyrone (Gregory Hines), a saxophonist with whom he bonds over their shared Tourette’s and love of music.

The Road Within (101:35) - Rated R After the passing of his mother, Vincent (Robert Sheehan), a teenager with Tourette Syndrome, is enrolled in a behavioural facility by his father. Three unlikely companions with clashing personalities find themselves on a three-day journey to scatter the ashes of Vincent’s mother, making for hilarious antics and unexpected new friendships.

Front of the Class (95:55) - Rated PG Based on the book by Brad Cohen, Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had, the movie follows young Brad as he is is determined to be a successful teacher. Following 24 rejections, he is accepted not only by a school where he shines as a gifted educator, but also by Nancy who becomes his wife.

Hichki (76:07) - Not Rated After several interviews and numerous rejections, a woman who has Tourette's syndrome lands a job as a teacher at an elite school. She soon tries to do whatever she can to make her rebellious and trouble-making students realise their full potential. This Bollywood adaptation of Brad Cohen's autobiography Front of the Class: How Tourette Syndrome Made Me the Teacher I Never Had, had Cohen himself as an adviser. 

I put this (ASUTRA 2 Bottle Value Pack - Pure Zechstein Magnesium Oil Spray - LESS ITCH & LESS STING/Effective Rapid Transdermal Absorption - Ultra Pure & Potent https://www.amazon.com/dp/B01CKEBFSE/ref=cm_sw_r_cp_apip_WApyWg8vQXMwu ) on my daughters feet (4-5 pumps total) every night at bedtime to help with tics and anxiety. I think it has definitely reduced the frequency of them! She takes a B-complex vitamin with her bedtime meds to help absorption. Magnesium is best absorbed through the skin. It can sting the follicles if you’re deficient (most are) so bottom of feet is a good place since it doesn’t have hair there. If you take orally be careful of stomach upset. Hope that helps

If you really have to suppress, I suggest getting a mouthguard: mine blocks most all of my vocal tics and my spitting tic. Also: put your mental health ahead of suppressing. I'm not sure about you, but I can suppress for long periods of time, but then I am sent into a deep depression. For me, suppressing makes life entirely not worth living. Be sure you are comfortable and are giving yourself a break. If you think the mouthguard might help: https://www.amazon.com/gp/product/B00WZK5XEQ/ref=oh_aui_search_detailpage?ie=UTF8&psc=1
That's the one I use. It's a meltable plasticky wax thing, so it's moldable to your teeth, and there's some extra substance if you need. I molded the extra while it was warm into a knob I can press my lip into to stem other tics. it might mess up the height of your mouth enough to stop the clicking tic? I just realized I don't know where the tongue clicking is happening for you.

Best of luck of course!!

The book is


Natural Treatments for Tics and Tourette's: A Patient and Family Guide https://www.amazon.com/dp/1556437471/ref=cm_sw_r_cp_apa_19qZzbMHN6AC9

They gave a survey to parents and then ordered the results from most commonly reported triggers. They used to post the results on their site, but now they refer you to the book for it. Many of the most common food additives and chemicals/fumes are problematic for my son. Avoiding them religiously has become our way of life and no one would know he has Tourettes (unless he encounters one of those triggers). Some things trigger stronger reactions than others. But being consistently vigilant has, as I say it, "Changed my son from having special needs to having a special diet."

He had a bout of copralalia with a really stressful teacher, but we taught him to rhyme the words to reduce the urges. This worked and that tic has since waned away since we switched teachers.

The trigger elimination has been so effective and is so quickly recognizable, that i wonder if it is truly at the heart of Tourettes. Maybe he is genetically sensitive to these chemicals, and when exposed the tics manifest.

I can help! I have blinking and winking tics too and the Covergirl Total Tease mascara in waterproof (I use black/brown) works wonders for me. It doesn't run down my eyes or give me raccoon eyes even when I'm ticcing so much that I'm tearing up. It also comes with a nice little mini brush at the top that you can use to tease out your lashes to keep it from clumping. I exclusively use the waterproof stuff. While it's a bit harder to wash off I haven't had any issues with it not coming off after washing my face. https://www.amazon.com/COVERGIRL-Refined-Waterproof-Mascara-Packaging/dp/B06XR8RJVH

Hope that helps!

In short. I have suppressed them for years.
https://www.amazon.com/dp/B07H7WVN5Y
At first I learnt to redirect say a motor tic which was very noticeable to a less noticeable tic like teeth grinding or jaw pulsing. However using self hypnosis and visualisation I have not displayed a tic of any kind in several years.

Anyone who tells you that Tourettes can't be overcome has either given up or not tried. Drugs are used to either suppress or induce an effect and therefore have no real long term on Toutettes sufferers. The mind however is remarkable and can be reprogrammed. Trust me. All the best

Hopefully it is OK to post a link here. Try these - they are little rubber rolls to bite down on (supposed to be used with invisilign braces to seat them properly).

https://www.amazon.com/OrthoBands-AC-25WPP-Aligner-Chewies-Unscented/dp/B00GBHS91S

Kal Magnesium Glycinate 400 Mg, 90 Count https://www.amazon.com/dp/B0779GFZSG/ref=cm_sw_r_cp_api_i_6q2oDbHYQG1SV

I also tried using it for [sleeping] bruxism as well. Did you notice immediate relief or after a few days of taking it 2-3x daily?

There is cognitive behavioural therapy that you could look into in the meantime.
https://www.amazon.ca/Managing-Tourette-Syndrome-Behavioral-Intervention/dp/0195341287/ref=mp_s_a_1_4?keywords=tourettes+syndrome&qid=1562844301&s=gateway&sprefix=tourette&sr=8-4
We do it with my daughter and it has had some great success.
Your father has a lack of understanding of what is going on and unfortunately forces that on you.
Go see a doctor and get a referral to a Neurologist.
Bring your dad with you when you see the Neurologist.

You're right sick is absolutely the wrong word, I apologize. In fact a label like that is the opposite of what I was trying to convey, which was that I think binary classifications are not what you want to teach. You don't want to say most people are 100% fine, but you have this TS, therefore you are in this other category of broken or sick, and worse yet disabled in some way.

I think it's better to take this as a lesson to explain neurodiversity, that brains vary. That people have talents and gifts, but sometimes they also have problems that must be dealt with cared for. And sometimes the gifts are related to the problems. So the goal can't be to just wipe out everyone's gift.

The OP was talking about a 10 year old. I think "Dad has TS" is the wrong message for a 10 year old. I think a 10 year old cannot possibly understand what that really means, and will get the wrong idea. I think you should acknowledge that Dad has these symptoms, and they can be a pain in the butt, but that he works hard to manage the symptoms, and that Dad's future can be bright even with the challenges. After all the kid might develop symptoms, and anything you can do to put them in the right mindset to deal with those symptoms the better.

I do not have TS but I recently read a book "Genius!: Nurturing the Spirit of the Wild, Odd, and Oppositional Child" out of concern for our son. The author lumped TS, Bipolar, Autism and ADHD together and has some really good insights about them. He presented a very positive pro-active way of dealing with kids that have some of these symptoms.

He said kids need a "narrative", a story that includes having these problems to deal with, but explains how they are rising above them. I think Dad can have a narrative too. A story about how he first discovered the symptoms and what he does to mitigate them. And a narrative about where's going in the future, how things are going to be okay. I don't think slapping on the label "TS" helps anything, at this age. But this is just my hunch, based on reading, and not personal experience. I can't really say I know that much about TS.

Genius book: https://www.amazon.com/dp/B0033PRGCY

​

No problem, in terms of working with the school system, I would recommend a book that goes over some of the trials and tribulations of such, though more of a memoir of raising interesting kids.

https://www.amazon.com/dp/B009C7SW9I/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1

​

This may also be of some help

https://www.brighthubeducation.com/homeschool-rules-regulations/103343-how-to-use-an-iep-for-a-homeschooled-student-with-special-needs/

I think overear headphones would help by wrapping around your ears so they don't fall off if you shake your head.
My Headphones: Turtle Beach Recon 70 Gaming Headset for Nintendo Switch - Nintendo Switch https://www.amazon.com/dp/B07NH6Q4LB/ref=cm_sw_r_cp_apa_i_ywE2Db2ZKQAFY
(They are for Nintendo switch but are just a 3.5 millimeter jack and should work for PC)

How about trying a mouthguard then?
https://www.amazon.com/Wilson-Single-Density-Mouthguard-without/dp/B007008FFU/ref=sr_1_2?s=toys-and-games&ie=UTF8&qid=1498378415&sr=1-2&keywords=mouthguard

They... can. You're still going to get a lot of bone conduction, but earplugs would help with the higher frequencies (where most of the actual damage happens). Look for earplugs that cater to musicians. They tend not to color the sound, they have a stated noise reduction factor, and a lot of them are small enough to not be obvious to the people around you.

Here's the set I use (not for my vocal tics, though): https://www.amazon.com/TheFitLife-Noise-Reduction-Ear-Plugs/dp/B07NRP6FPS

But there are TONS of these out there. Take a look around.

If you want to try before you buy, any of the industrial noise reduction ear plugs out there will also work. Any hardware store should stock these. They're cheap, disposable, and will at least let you know if you're on the right track.

> My main question is, how do you guys deal with sleeping, are there any techniques you'd recommend?

Oh, my goodness, was it hard when I was young. So much tossing, turning, and ticcing. Things that have helped me:

• Getting older, and my tics getting less severe
  
• Reading Sleep Thieves and getting some good "sleep hygiene"
  
• Exercising during the day, so I'm nice and worn out at night.
  
• Being old and tired all the time. :-(