(Part 2) Best products from r/UlcerativeColitis

I totally understand. Things were similar for me. I had ulcerative colitis symptoms a few years before my diagnosis as well, but in my case they corresponded with times of stress and nervousness. For example, I flew a lot for business and every morning of a day when I had a flight, I’d be on the toilet for hours. It wasn’t until I saw blood that I went to a doctor. That was eight years ago now.

I lucked out with a great gastroenterologist then. He just happened to be who got scheduled for my initial colonoscopy and was willing to take me on as a patient. We scheduled follow-up appointments every month until I was symptom-free. I first started on oral mesalamine, but that alone didn’t work. Neither did adding a mesalamine enema. I did a bunch of research in the scientific literature and found this journal article on wheat grass juice and this article on combining a nicotine patch with mesalamine. Both were shown effective. He was happy to prescribe a nicotine patch (I’m a non-smoker and had never smoked), and I also started taking 21 of these wheat grass tablets every day. Within a few days my symptoms lessened—fewer bowel movements, more solid stools—and within a month I was totally symptom-free. I continued on the nicotine patch for 4 weeks total, stopped the enemas after eight weeks, reduced my daily mesalamine by half, and continued the wheat grass for a couple of years, slowly tapering off.

Since then I’ve only had three flares, with blood, etc. So every couple/few years. Each time I’ve just added that stuff back and my symptoms have gone away within a month. In between, I have no symptoms whatsoever and I eat whatever I want with no problems. I have one or two solid stools a day, just like any normal person. All I take every day is some Lialda (mesalamine). My gastroenterologist since moved away, but since then all I’ve needed were refills from my new guy.

I just had a colonoscopy last week and my colon was perfect. Literally indistinguishable from a healthy colon. I’d been having a flare two months before and did the same treatment again, and all the symptoms went away as usual. But there was one difference this time: There’s abdominal pain that didn’t go away. After a month of that, my new gastroenterologist first added prednisone, which didn’t help, but now after the colonoscopy he and I are convinced the pain is not ulcerative colitis related, so I’ll be having a CT scan to track the cause of that down. But my UC-symptoms are once again gone.

Anyway, I just wanted to let you know that full remission is possible. Once you’re in remission, the only thing you’ll need to do is take your daily medication and ulcerative colitis will likely stand at bay for years.

Good luck; keep us updated. And please do make an appointment with your gastroenterologist as soon as you can; every day you have symptoms means the inflammation in your colon is causing more and more damage, so stopping that needs to be your top priority. I’m guessing the prednisone was a short-term thing for you and you’re not still on it; stopping your symptoms for years may be as simple as doing a two-week course of prednisone (followed by a taper), doubling your mesalamine dosage for a month, and adding a daily mesalamine enema for four or eight weeks. (Or, if you’re crazy like me, using wheat grass and a nicotine patch.) And then just going back to your regular dose of mesalamine. If things have advanced a bit more for you, there may be a bit more, but it sounds like your symptoms aren’t too bad yet.

BTW, how was the celery juice this morning? 😃

I was diagnosed 2 years ago. I was really confused the first year about what I should be worried about and what was normal. I read a book called The First Year: Crohn's Disease and Ulcerative Colitis: An Essential Guide for the Newly Diagnosed
by Jill Sklar (https://www.amazon.com/First-Year-Ulcerative-Essential-Diagnosed/dp/1600940226), and it helped me better understand the disease. I highly recommend it.

Even better than Visioniome and requires no refrigeration. https://www.amazon.com/dp/B0050FKPU0/ref=cm_sw_r_cp_api_i_pEDkDbRSB9VR4

After watching on Shark Tank, I’m a Pristine Spray convert.

i believe these are pills already made to take. If its powder form buy some capsules and fill them. These are the ones I used. I took 2-3 a day. https://www.amazon.com/dp/B01KY6XS08/ref=psdc_3773931_t1_B01KYBWYKS

These should cover all your nutrients and electrolytes:

https://www.amazon.com/dp/B00SK66I7A/
https://www.amazon.com/dp/B0052ONXWQ/
https://www.amazon.com/dp/B000VGCJ4I/
https://www.amazon.com/dp/B01DFA1UZA/

My dad had nausea. He used Seabands because he didn't want another medicine. https://www.amazon.com/Sea-Band-Wristband-Natural-Nausea-Relief/dp/B00TDEMPUW/ref=sr_1_6?keywords=sea+bands&qid=1563364973&s=gateway&sr=8-6

Many states have passed the Restroom Access Act (Ally's Law) for people with specific medical conditions to have access to bathroom. You can also request for a card here.

In any case, I too have a similar set up, but in my car in case of an emergency in the middle of a drive. It's a bucket but with a toilet seat that you can get on Amazon

If theres room alluded for a bucket in said vehicle they make toilet seats that snap onto them and can make all the difference. Being stuck on the side of the road sitting on a seat wile dealing with cramping during a flare up is sooo much better than squatting or leaning against something. And in some cases you may be stuck there for a little longer than planned so all the more reason to have a seat. Make sure to have bags aswell. Also a can of ozium spray never hurts to have for smell incase theres an accident in the vehicle.

Emergency Zone Brand Honey Bucket Emergency Toilet Seat, Single Pack https://www.amazon.com/dp/B004KLY5CE/ref=cm_sw_r_cp_apa_i_GZWUDbSAP447T