Best products from r/mastcelldisease

I would recommend it. You'll have to be stricter initially and maybe for years but then you should be able to have more stuff. Allergy specialist might not be much help with the MCAS either. But hopefully they will.

I recommend this author and this book is quite useful, if somewhat old. I accidentally stumbled on the histamine intolerance diet in this book - because I was basically already on the diet, just needed to eliminate tomatoes and vinegar. (Which is a nightmare initially but you'll feel better.)
Dealing with Food Allergies: A Practical Guide to Detecting Culprit Foods and Eating a Healthy, Enjoyable Diet There's a newer version "packaged" as a text book for nutritionists. I just bought it used but it's more expensive.

You're going to need to figure out what your body agrees with. Histamine is a bucket to fill. You don't want to overflow the bucket. I'd start by dropping alcohol, tomato, food with preservatives, 90% soda, and vinegar.

You also want to learn about the age of food and how histamine develops as food gets older. You probably don't want to eat cooked food that's older than 2-3 days, assuming it was stored properly. You might not want to go over 48 hours. (Some people will eat leftovers a month later and then don't understand when they get sick. Hopefully this doesn't describe you.)

Be careful of all the websites and recipes and, well, shit, out there. There's so much more now than a few years ago. When you Google histamine intolerance now there's even more to wade through. Joneja has a website and other books. She's a fantastic source.

A more in depth book about MCAS by Afrin came out last year.

THIS is a fantastic academic journal article about histamine. I've seen it cited multiple times. It has a few tables/graphs that are super interesting.

Remember, your first and best sources are doctors and people with licenses. People who are sharing their experiences are great too but they might be very wrong and who knows how your body is different from theirs. You have to learn to understand what your body says is good or bad and some days that varies.

oh! almost forget. You might want to avoid NSAIDs if you don't already. Depends, on you, of course.

edit: I am not actually "officially" diagnosed but I clearly have fucked up mast cells and a fucked up immune system.

All right I’m gonna change your life. I have the same problem, can’t even sleep on dusty pillows. Buy inflatable camping pillows. I’m serious, having allergens that close to your face for 8 hours takes a serious toll.

https://www.amazon.com/gp/aw/d/B075V58V4T?psc=1&ref=ppx_pop_mob_b_asin_image

This pillow is durable. I’ve had it for a year now and it hasn’t popped especially if you don’t inflate it to bursting. It’s comfortable enough that my boyfriend steals it instead of using his dusty pillow and wants one of his own.

This one is closest to feeling like a normal/big pillow but sometimes develops leaks.

https://www.amazon.com/gp/aw/d/B01MAZFT87?psc=1&ref=ppx_pop_mob_b_asin_title

I also bought a foam bed (not memory foam, too many fumes) because it gets less dusty and put an allergy cover on it immediately after buying and never removed it. This doubled how good my sleep was.

Alternately, you can buy a dehumidifier to stop dust mites/mold. Bed and pillow dust mite covers (not just tight cotton weave, get the vinyl or plastic or whatever backed kind). Maybe a foam pillow would be good enough for you, but I react to VOCs/fumes from memory foam so I can’t have it next to my face and you can’t get less dusty than a pillow that is 99% air.

I also tried washing my pillows every month in the washing machine on higher heat than recommended but it didn’t work long term just because of effort and it was still causing symptoms half the time. Another thing I tried was buying cheap new pillows every few months and giving them away after. Used to use stacked towels instead on vacation and wake up with a crick in my neck. Ugh. Glad I figured this out.

To make the salt I use these pill capsules and fill them with a mixture of 1 part potassium citrate powder. I’ll put 1 1/4 teaspoons uniodized salt (it’s important that it doesn’t have iodine because you’re consuming a lot and don’t want iodine poisoning) in a bowl with 1/4 tsp potassium, stir it up, and then I open the pill, hold it over the bowl a and pour a spoonful in (so the extra just falls back in the bowl), and pop the cap on. I do that until I run out of powder. It’s super easy, I just watch Netflix at my desk and do it. Each capsule is about 250g of salt and 50g of potassium.

It’s cool that magnesium does all that for you! I took a really high dose of it for years, but at the moment I’m off all of my supplements except salt because I was having anaphylactic reactions a few weeks ago and we simplified my meds as much as possible to reduce variables. Eventually I’ll go back on them one at a time to assess their benefits.

1. The brain fog improved a bit, and I noticed for me, it's tied to what I am eating and what foods weaken me and/or what allergens I am exposed to (mold, perfume, pollen, etc...)
   
2. My symptoms improved greatly after a few weeks. I actually reacted to it at first and could only manage a 1/4 vial for a few days, then a 1/2 vial and after 2.5 months worked my way up to the 4/day. In the last few months I have had minor reactions and they've been tied to meat and zucchini (the weirdest trigger foods). The flush, bathroom usage, and chest/throat burning has decreased dramatically.
   
3. I always carry a water bottle with me, also a Life Factory bottle and I purchased a Prac-Medic Bag from Amazon to keep my Epi-Pens, Cromolyn Sodium, inhaler, Benadryl, and medical ICE contacts.

I'm at about $120 a month of I assume 4 a day. It's $60 for 60 capsules on Amazon.

https://www.amazon.com/gp/aw/d/B072F1WKQH/ref=mp_s_a_1_1_a_it?ie=UTF8&qid=1542812059&sr=8-1&keywords=Umbrellux+DAO+-+Histamine+Neutralizing+Enzyme+-+60&dpPl=1&dpID=41GZ0mt4vGL&ref=plSrch

My doctor suggested algonot neuroprotec

NeuroProtek 4 bottle 10% discount pack (60 softgel per bottle) https://www.amazon.com/dp/B0045J2FNW/ref=cm_sw_r_cp_api_i_XK9PCbTNYBVD0

Put gauze pads on it and then wrap gauze or Coban around to hold it in place.

What about plastic wrap? It sticks to itself so you could wind it around.

Or cut the end off of a sock and pull it over.

Honey is sticky and antibacterial. Wonder if that can be used in some way.