Reddit mentions of YOU: The Smart Patient: An Insider's Handbook for Getting the Best Treatment

The medical world can be a bitch. When a patient doesn't improve (or doesn't have a clear path to recovery, or doesn't have a diagnosis), the relationship between the patient and the doctor can deteriorate into what seems like a lack of empathy and understanding.

But you have to keep fighting. I had a severe chronic pain problem for 3 years (still do actually, but it's been getting much better) and never had a diagnosis. I remember feeling down, not having the strength to continue. I made the decision that whenever the condition gets worse, or I get another failed test result, I was just going to fight even harder. Don't lose strength! Do the opposite. It's tough, I can't even guarantee full success from it, but it's both rational and in your best interest. Bounce back.

Trying different doctors is important, but what's most important is finding good doctors. It's good to have some friends in the medical world who can refer doctors to you or give you some medical advice. There are many good books on dealing with doctors and the medical world. I got this one from my local library – it was pretty good, definitely worth the read.

Keep going! This isn't your fault! Never give up! Talk to your doctors, be honest, demand treatment, get answers! The relief is worth it.