Reddit mentions of Nokia BPM+ – Compact Wireless Blood Pressure Monitor

Eccentriczebpajamas, congrats!

Fellow hEDS, got married last July (pre-diagnosis), and I think I’ve got some ideas for you:

For the shoes, not sure where to look - I have really HUGE feel (size 12-13 women’s), so I struggled too, but ended up finding a cheap pair that looked great and kinda worked for me. They were tolerable but not comfortable, and I regret not focusing more time on finding a better pair.

For the registry, I’ve had really good luck with the OXO Good Grips series of stuff (their handles are chunky enough that I don’t tend to sublux my fingers, even gripping hard)

The can opener I use is a blue version of this one: (OXO Good Grips Can Opener https://www.amazon.com/dp/B00004OCJW/ref=cm_sw_r_cp_api_5-Z.zbZ5E94HD)

They also have a kitchen starter set that might be good to work with:(OXO Good Grips 15-Piece Everyday Kitchen Tool Set https://www.amazon.com/dp/B000IELD9A/ref=cm_sw_r_cp_api_Ka0.zbT8JYQX5)

When I can cook, I use these gloves instead of potholders - they’re great for the heat, don’t require as much hand strength/fine motor skills as potholders would, and also do a great job at gripping/opening stuck can lids: (Silicone Oven Gloves Extra Thick Heat Resistant Oven Mitts from Aocome, for Cooking Grilling BBQ and Baking, Quilted Cotton Lining, Waterproof Non-Slip Grip Food Grade Safe 1 Pair https://www.amazon.com/dp/B01J76A9AI/ref=cm_sw_r_cp_api_id0.zbEAKKA40)

For sitting, this chair is my favorite. Looks goofy, but hurts WAY less than anything else I’ve tried:
(Gaiam Balance Ball Chair - Classic Yoga Ball Chair with 52cm Stability Ball, Pump & Exercise Guide for Home or Office, Purple https://www.amazon.com/dp/B006FFR37W/ref=cm_sw_r_cp_api_6e0.zb9Y7MDYQ)

A WiFi blood pressure monitor like the one from Nokia (I have the older Withings version) can be great for helping keep track of your overall health (along with things like FitBits, WiFi thermometers, etc., if you’re into that: (Nokia BPM+ – Compact Wireless Blood Pressure Monitor https://www.amazon.com/dp/B071F2MC29/ref=cm_sw_r_cp_api_Qg0.zb3J5YKKN)

Finally, if you have room, a shower stool can be super helpful if you spend too many spoons in one place and struggle to stand up in the shower (there are lots of types, including pretty wooden ones, but this type is really easy to assemble): (Medokare Shower Stool with Padded Seat - Shower Seats for Seniors with Tote Bag, Shower Bench Bath Chair, Handicap Shower Seat for Adults, Shower Stools and Benches https://www.amazon.com/dp/B06XXZQ4XS/ref=cm_sw_r_cp_api_mj0.zb5C9TRYX)

Oh! And bonus last-minute add: overhead lights that you can turn off from your phone, so you can go to bed and THEN turn off the lights, instead of trying to fumble your way across your room in the dark (they can also turn your room into a bright rainbow disco, if you’re into that): (Philips Hue 464479 60W Equivalent White and Color Ambiance A19 Starter Kit, 3rd Generation, Works with Amazon Alexa https://www.amazon.com/dp/B06Y3QXSGX/ref=cm_sw_r_cp_api_0l0.zb2N2PB53)

Good luck, and I hope you have a wonderful wedding day!


...ETA, this set of pots and pans! They have big rubbery handles that are easy to work with, and they’re easy to clean - they can go straight into the dishwasher: (The Pioneer Woman Vintage Speckle 10-Piece Non-Stick Pre-Seasoned Cookware Set (Turquiose) https://www.amazon.com/dp/B014X6NQI4/ref=cm_sw_r_cp_api_ov0.zb32WQSJ3)